If you need basic information on a syndrome or condition e.g.what it is, symptoms, treatments etc. then try these sources
CONTACT A FAMILY
This organisation provides excellent basic information on hundreds of conditions and syndromes that affect children. The directory also provides contact information for support groups associated with each condition.
You can access a small number of records without paying. If you need more acceses the Library has a subscription so please contact Sheila by email library@cope-foundation.ie
NHS DIRECT
This site provides authoritative information for patients.
The site aims to provide information and advice about health, illness and health services, to enable patients to make decisions about their healthcare and that of their families.
