17 Dec 2012

Final report on Winterbourne View Hospital

The government has today published its final report into the events at Winterbourne View Hospital and has set out a programme of action to transform services so that vulnerable people no longer live inappropriately in hospitals and are cared for in line with best practice.
The programme of action includes:
  • by spring 2013, the department will set out proposals to strengthen accountability of boards of directors and senior managers for the safety and quality of care which their organisations provide
  • by June 2013, all current placements will be reviewed, everyone in hospital inappropriately will move to community-based support as quickly as possible, and no later than June 2014
  • by April 2014, each area will have a joint plan to ensure high quality care and support services for all people with learning disabilities or autism and mental health conditions or behaviour described as challenging, in line with best practice
  • as a consequence, there will be a dramatic reduction in hospital placements for this group of people
  • the Care Quality Commission will strengthen inspections and regulation of hospitals and care homes for this group of people, including unannounced inspections involving people who use services and their families
  • a new NHS and local government-led joint improvement team will be created to lead and support this transformation
This programme is backed by a concordat signed by more than 50 partners, setting out what changes they will deliver and by when. The government will publish a progress report on these actions by December 2013.
The final report into the events at Winterbourne View Hospital states that staff routinely mistreated and abused patients, and management allowed a culture of abuse to flourish. The warning signs were not picked up, and concerns raised by a whistleblower went unheeded.
The report also reveals weaknesses in the system’s ability to hold the leaders of care organisations to account. In addition, it finds that many people are in hospital who don’t need to be. People with learning disabilities or autism, who also have mental health conditions or challenging behaviour can be, and have a right to be, given the support and care they need in the community, near to family and friends.
Read the full final report and related documentation:

11 Dec 2012

The Progression of Early Intervention Disability Services in Ireland

The Progression of Early Intervention Disability Services in Ireland: The Republic of Ireland is an island situated in north-west Europe inhabited by 4.6 million people, with 2.8% between 0 and 4 years of age with a disability (Central Statistics Office, 2012). The Irish Government funds the Irish health services, which, in turn, directly and indirectly funds disability services. Education and Disability legislation have developed in parallel, with an apparent increasing congruence with both moving toward a rights-based approach. Today, early intervention disability services are delivered by both statutory and nongovernmental agencies with wide variation and no national consistency in service provision. Some components of the Developmental Systems Approach can be discerned in Irish service provision, and these include screening, access, comprehensive interdisciplinary assessment, and early childhood programs. However, assessment of families, development and implementation, monitoring and outcome evaluation, and transition planning are not as identifiable. Guided by legislation and organizational restructuring, early intervention provision in Ireland is in a state of flux with an emphasis on developing national uniformity of family-centered early intervention services.

Contact the library to order articles, borrow books, help with research.
Apologies for flood of updates all at once; our network at is being upgraded and the work is complete I will be able to resume weekly (ish!) updates.
Sheila.

Direct payments: a national survey of direct payments policy and practice

Direct payments: a national survey of direct payments policy and practice: Direct payments allow people to arrange their own social services. They give individuals control over the social care funding to which they are eligible, and are seen as an important vehicle for promoting independence and choice. Yet there are substantial variations in direct payment arrangements. This UK-wide survey suggests that direct payments packages are provided to people receiving more hours of care per week than the average social care recipient. Significant disparities between local councils were found in the proportions of eligible people receiving direct payments as well as in hourly payment rates, which may affect how individuals attain a fair stake in the market for social care. Also, there were wide variations in the proportion of local community care budgets spent on direct payments, both between areas and across user groups. These were largely reflected in the strength in developments for different users groups; 15.5% of the budgets of English authorities for people with a physical disability was spent on direct payments, compared to 1.1% for people with a learning disability, 0.8% for older people and 0.4% for people with a mental health problem.


Outcomes for parents with disabled children

Outcomes for parents with disabled children: Parent and family support is central to government policy on ensuring the well-being of children. Whilst much is known about the difficulties and challenges parents with a disabled child face, and what parents want for their children, very little is known about how parents want their own lives to be. This report presents findings from research with parents of disabled children about the outcomes they desire for themselves, and their views on the role services can play in helping them achieve those outcomes.  Ninety mothers and eighteen fathers across three local authorities participated. Parents’ desired outcomes focused on maintaining or enhancing their personal identity, their physical and emotional well-being, and their skill and knowledge base. They also expressed a desire for a better balance between their caring and parenting roles. In addition to individual outcomes, parents described family-level outcomes including maintaining family life and ensuring the positive adjustment of siblings. Also, parents wanted sufficient practical and financial resources to meet the needs of their disabled child and the rest of their family.

Contact the library to order articles, borrow books, help with research.

Choice and independence over the lifecourse: final report to the Department of Health

Choice and independence over the lifecourse: final report to the Department of Health: Between 2006 and 2011 the Social Policy Research Unit (SPRU) at the University of York carried out a programme of research on choice for disabled and older people who need social care support, and their family carers, called ‘Choice and Independence over the Lifecourse’. This final report for the Department of Health (DH) provides an overview of this programme of research. The account of the research is divided into 3 sections: projects funded from the main DH programme grant; projects funded through SPRU’s ‘responsive mode’ capacity; and other projects linked to the DH programme. An account of the relevance of the research programme to DH policy and its implementation at local levels is also provided. The research conducted by SPRU within its DH-funded programme has, for the most part, been concerned with issues of choice, from the perspectives of users, carers, service providers and managers. At the heart of the programme was a major long-term study of disabled young people, working age adults and older people as their health and other circumstances changed. The report concludes with a list of the published outputs (peer reviewed journal articles, books and reports, research summaries, professional press, and presentations) emerging from this research programme.


Publication of Your Voice Your Choice Report 2012

Publication of Your Voice Your Choice Report 2012
This Report captures the views and experiences of the participants in Your Voice Your Choice and will help inform the development of the National Disability Strategy Implementation Plan.
Contact the library to order articles, borrow books, help with research.

NDA Research Databases

NDA Research Databases:

NDA Research Databases

The National Disability Authority hosts two searchable database of Irish disability-related research, which are a valuable resource for researchers, policymakers and practitioners. The NDA wishes to add new records to the completed reseach database covering the period from January 2006 to present. If you or a member of your organisation has published disability research during this timeframe that you believe should be included in the database, please submit details of the research using this online Research Database submission form.
NDA also hosts a Research in Progress Database. If you or a member of your organisation is currently conducting disability research that you believe should be included in this database, please submit details of the research using this online Research in Progress submission form.


Involvement in risk management process wanted by majority of sample of people with learning disabilities

Involvement in risk management process wanted by majority of sample of people with learning disabilities: Risk management is an integral part of supporting people with learning disabilities. The researchers in this study were interested to look at the involvement of people in making decisions about risks in their lives. They wanted to look at the how staff considered the individual’s ability to assess the associated risks and make an informed [...]


New film aims to enable people with learning disabilities to talk about death and dying

New film aims to enable people with learning disabilities to talk about death and dying: Last week we posted about a study looking at end of life are for people with learning disabilities through the experiences of the staff supporting them. This week, we would like to draw your attention to a new film that has been produced by CHANGE for Dying Matters and the National End of Life Care [...]

Lack of strategic commitment to annual health checks threatens to widen health inequality for people with learning disabilities

Lack of strategic commitment to annual health checks threatens to widen health inequality for people with learning disabilities: We have posted previously about health checks for people with learning disabilities, for example, the work of My Life My Choice, who looked at why it was that so few people with learning disabilities in their locality were getting access to annual health checks. We have also posted about the findings of a systematic review [...]


New NHS mandate identifies key objectives for people with learning disabilities

New NHS mandate identifies key objectives for people with learning disabilities: The NHS has this week published a new ‘mandate’ which sets out a number of agreements between the Government and the NHS Commissioning Board, which is responsible for improving  health outcomes by supporting the commissioning of effective services. The mandate identifies five areas for improvement: preventing people from dying prematurely enhancing quality of life for [...]


Aspergers dropped as psychiatric manual is revised

Aspergers dropped as psychiatric manual is revised: THE term 'Asperger's disorder' has been dropped from one of the world's most influential psychiatric manuals. And abnormally bad and frequent temper tantrums will be given the scientific-sounding diagnosis 'DMDD'. But 'dyslexia' and other learning disorders remain. The revisions come in the first major rewrite in nearly 20 years of the American Psychiatric Association's 'Diagnostic and Statistical Manual' (DSM), approved by the board on Saturday ...

Contact the library to order articles, borrow books, help with research.

Use of psychiatric diagnostic tool sharpens understanding of mental health issues in people with learning disability

Use of psychiatric diagnostic tool sharpens understanding of mental health issues in people with learning disability: Estimates of the prevalence of co-morbid psychiatric problems in the learning disability population have varied greatly in the literature, often bedeviled by a lack of clarity around case definition. The Diagnostic Criteria for the identification of psychiatric disorders in people with learning disabilities (DC-LD) was developed by working groups of the Royal College of Psychiatry [...]


26 Nov 2012

Physiotherapists Databases Day

Journals and Searches for Physiotherapists 

Sheila O'Flynn - November 27th 2012


Two things that our Health Databases can do for you:
  1. Find full text physiotherapy journals
  2. Search across journals  

Find full text physiotherapy journals
Go to IDAAL LINK
(Google search Idaal.com)
Save Link in your Favourites
Select A-Z Journals Link 







  • What journals do you like to follow?
  • Search for named Physiotherapy journals
  • Search  for a journal about physiotherapy
  • Saving, printing, sharing
    • Select Items
    • Add to folder 
    • Print/Email
    • Set up an Account - Strongly Recommend
  • Short cuts to Journals (blog page) 
Search across journals   
Go to the database IDAAL LINK
Select All Databases Link 
  • SEARCHING
    • Feeling lucky?. Enter search terms
    • Use the Subjects Indexes









      •  Cinahl Subject Heading Physcial Therapy (74k)
      • Cinahl search "physiotherapy" (24k)
    • EXERCISE: Find the Medline subject heading for Physio?
    • Saving, printing, sharing
      • Select Items
      • Add to folder 
      • Print/Email 
    • Short cuts to searches





    9 Nov 2012

    Draft National Standards for Residential Centres for People with Disabilities

    Consultation Process for Draft National Standards for Residential Centres for People with Disabilities

    The Health Information and Quality Authority (HIQA) has published, for public consultation, draft national Standards for care centres providing residential services to adults and children with disabilities. HIQA is seeking feedback on the draft Standards from interested groups, residents and their families and from the general public.

    22 Oct 2012

    Early Intervention Journals




    Early Intervention

    Links to journals and short cuts to searches
     (Oct 2012)
    Click on the links to go to the journal and a listing of all its contents You will be able to see abstract contents for all issues and full text for many - some full text is restricted to older issues only but any new articles can be ordered for you (Contact Sheila Ext 3204 or email the Library). 

    Journals
    A selection of early intervention and special education journals – others are available.

    British Journal of Learning Disabilities
    CINAHL Plus with Full Text 2000 to present (Embargo: 1 year)

    Infants & Young Children
    CINAHL Plus with Full Text 1999 to present

    Journal of Autism and Developmental Disorders
    CINAHL Plus with Full Text 1993 to present (Embargo: 1 year)

    Journal of early intervention
    CINAHL Plus with Full Text 2006 to present

    Journal of Learning Disabilities

    Journal of Occupational Therapy, Schools & Early Intervention
    Taylor & Francis 2008 to present

    Subject searches
    Short cuts that search our Health Databases for articles of interest.

    For articles tagged Early Intervention in the CINAHL database

    For articles tagged Early Intervention in the PUBMED database

    For articles tagged Early Intervention in the PsychInfo and Psych Behavioural Sci Databases

    For articles tagged Special Education in the Psychology Databases

    To learn how to build your own searches, set up alerts for new articles etc.. then contact Sheila (Ext 3204) or email The Library

    Physiotherapy Journals via our Health Databases Collection


     
     Physiotherapy Journal Links 

    Physiotherapy Searches - Short cuts
    Available to COPE Staff via our Health Databases Collection.
    (Oct 2012)


    Feeling Lucky - To start searching the Health Databases IDAAL 


    Journal Links
    Click on the links to go to the journal and a listing of all its contents You will be able to see abstract contents for all issues and full text for many - some full text is restricted to older issues only but any new articles can be ordered for you (Contact Sheila Ext 3204 or email the Library).
    Advances in physiotherapy
    CINAHL Plus with Full Text 1999 to present (Embargo: 18 months)

    Developmental Neurorehabilitation

    Disability & Rehabilitation
    Disability & Rehabilitation: Assistive Technology
    ·         CINAHL Plus with Full Text 2006 to present (Embargo: 18 months)

    International Journal of Therapy & Rehabilitation

    Journal of Occupational Rehabilitation

    Journal of Rehabilitation Research and Development

    Journal of Vocational Rehabilitation

    New Zealand journal of physiotherapy

    Physical & Occupational Therapy in Pediatrics

    Physical therapy

    Physical Therapy Reviews

    Physiotherapy Canada
    Physiotherapy Research International
    CINAHL Plus with Full Text 2000 to present (Embargo: 1 year)
     Physiotherapy Theory & Practice
    PHYSIOTHERAPY searches



    28 Sept 2012

    MS Specialist Nursing Guide - HSE Guidance

    Multiple Sclerosis Specialist Nursing A guide to Best Practice

    The Multiple Sclerosis Specialist Nursing in Ireland: A Guide to Best Practice (2nd Edition) was launched by Dr Kathleen Mac Lellan, Nurse Advisor; Department of Health on Friday September 7th. This guide, developed by the Irish Network of Multiple Sclerosis Nurses in partnership with the HSE National Nursing and Midwifery office, will be a useful to support specialist and non specialist nurses and midwives who care for people with Multiple sclerosis. 
    Online Copies
    Print Copies available from Sheila in the Library Ext. 3204

    21 Sept 2012

    Professionalism in nursing, midwifery and the allied health professions in Scotland

    Professionalism in nursing, midwifery and the allied health professions in Scotland: a report to the Coordinating Council for the NMAHP Contribution to the Healthcare Quality Strategy for NHSScotland

    Professionalism in nursing, midwifery and the allied health professions in Scotland: a report to the Coordinating Council for the NMAHP Contribution to the Healthcare Quality Strategy for NHSScotland

    Tuesday, July 3, 2012
    ISBN: 9781780459257
    The report seeks to explore the complex issue of professionalism and is focused primarily, but not exclusively, on the Nursing, Midwifery and Allied Health Professionals workforce in NHSScotland

    Executive Summary

    Professionalism is widely accepted as a central element of health care, but it is a complex and multifaceted concept that is often difficult to define. Consequently, it is frequently described in terms of its absence and the negative values, behaviours and relationships that are demonstrated when things have gone wrong. The emphasis should therefore shift to reinforcing the positive and professional behaviours that are expected of staff and to articulating how they can be motivated and supported to enact the quality agenda.

    Review of Academic Programme Validation of certain Complementary Therapies

    Press Release, Wednesday 5th September 2012

    The report of the Review of the academic programme validation of certain complementary therapies, commissioned by the Higher Education and Training Awards Council (HETAC) and the Department of Health, has been published today (Wednesday, 5th September 2012) on HETAC’s website (http://www.hetac.ie/publications_other.htm).

    7 Sept 2012

    Abuse and neglect in institutional care


    The ‘Out of sight’ report highlights cases of abuse and neglect within learning disability services.
    Read more…

    3 Aug 2012

    Value for Money and Policy Review of Disability Services in Ireland

    Value for Money and Policy Review of Disability Services in Ireland

    Year published: 2012
    Download this document as a PDF

    Value for Money and Policy Review of the Disability Services Programme - Recommendations

    Value for Money and Policy Review of the Disability Services Programme - Questions & Answers

    Value for Money and Policy Review of the Disability Services Programme - Findings

    The National Disability Authority hosts a searchable database

    The National Disability Authority hosts a searchable database

    The National Disability Authority hosts a searchable database of Irish disability-related research, which is a valuable resource for researchers, policymakers and practitioners. The NDA wishes to add new records to the database covering the period from January 2006 to end March 2012. If you or a member of your organisation has published disability research during this timeframe that you believe should be included in the database, please submit details of the research.....

    Contact me for further details and to ensure your research papers are recorded for sharing within COPE.

    NICE - Spasticity in children - Full Guidance July 2012

    6 Jul 2012

    New Adult Autism Guidelines - UK

    NICE publishes new adult autism guidelines

    The National Institute for Health and Clinical Excellence (NICE) has published its first set of guidelines on the referral, diagnosis and management of autism in adults and provides a full clinical pathway of care for those with the condition.
    The guideline forms part of the Department of Health’s autism strategy, which aims to provide a clear and consistent pathway for diagnosis, and provide help for adults with autism to get into work and keep jobs, among other things.
    This guideline is considered best practice, and is read by health and social care commissioners across the UK. The recommendations include:

    New Book - Sleep Difficulties & Autism


    Sleep Difficulties and Autism Spectrum Disorders

    A Guide for Parents and Professionals

    Kenneth J. Aitken

    Paperback: £24.99 / $39.95
    ISBN: 978-1-84905-259-7, 
    Problems with sleeping are common and make life difficult for the individual who is affected and for those around them. Sleep difficulties are particularly prevalent amongst people with Autism Spectrum Disorders (ASD) and often cause or worsen other difficulties.
    This comprehensive guide to the management of sleep problems, introduces all the proven remedies and focuses on the problems commonly found in ASDs and related conditions. The author discusses sleep in depth, including how we currently define and understand it. The full spectrum of sleep disorders is explained alongside the range of possible treatment approaches. The book also examines why some sleep problems are more common among people with an ASD than others, how sleep problems evolve over time, what can be done to treat them and the likely benefits from different treatments.
    This book is a complete resource for professionals, families and carers working with those suffering from sleep problems of any kind. It will be of great interest to anyone wanting to gain a thorough understanding of sleep in relation to ASDs.
    To borrow this book contact Sheila Ext 3204 or Email: Library at cope-foundation.ie

    29 Jun 2012

    HIQA - New Standard

    National Standards for Safer Better Healthcare

    Date of publication: 
    Tuesday, June 26, 2012
    These standards are immensely important for patients, placing them at the heart of the care process. They are aimed at protecting patients and improving services, and will form the basis for future licensing of all healthcare facilities in Ireland.
    An an audio version and short video about the Standards are available here

    22 Jun 2012

    Google - the other side

    ...and just to add balance to my earlier Post on Google: This quotation is woven into the carpet at Gungahlin Public Library in Canberra, Australia...

    Please feel free to contact me for answers with under 100,000 references!


    8 Jun 2012

    Ireland - clinical guidelines sought and consultation on clinical guideline development manual

    Submissions of clinical guidelines sought and consultation on clinical guideline development manual
    The NCEC is now consulting on the following:

    1.  Consultation on draft NCEC Clinical Guideline Development Manual
    The NCEC has developed a draft Clinical Guideline Development Manual. The purpose of this manual is to provide guidance on the development of clinical guidelines using a robust clinical guideline development process.
    We now wish to invite feedback on this draft manual. Every submission received will be considered and will inform the development of Version 1 of the Clinical Guideline Development Manual.

    The consultation period ends at 5pm, Monday 9th July 2012. 

    2.  Submissions of clinical guidelines sought

    A round-up of RNID Role reviews and studies

    A round-up of key RNID reviews and studies so far in 2012.....

    Update on the Review of Undergraduate Nursing and Midwifery Degree Programmes
    Information brief from meeting held on May 24 2012 click here 

    Intellectual disability nursing in Ireland: Identifying its development and future 
    Abstract
    As a profession, intellectual disability nursing has often come under scrutiny and been called into question. Since its inception as an individual nursing profession in 1959 in Ireland, both education and service provision philosophies have changed over time.Full Text [COPE Staff]

     Strengthening The Commitment: The Report of the UK Modernising Learning Disabilities Nursing Review
    Wednesday, April 25, 2012
    ISBN: 978-1-78045-785-7
    The report aims to ensure that people with learning disabilities of all ages have access to expert Learning Disabilities Nurses and that their families and carers get the best support and care. It also seeks to make best use of Learning Disabilities Nurses throughout the entire health and social care system and improve the career image of learning disabilities nursing as a whole.
     View as HTML
    Associated downloadable documents

    Learning from the past: Setting out the future sets out six recommendations to address the education, workforce and leadership issues and the Royal College of Nursing will be working with stakeholders to take them forward.  The Chief Nursing Officers of the health departments recently announced their intention to undertake a review Modernising Learning Disability Nursing across the four countries of the United Kingdom.
    Position Statement:
    Learning from the past – setting out the future.  A RCN position statement on the role of the learning disability nurse (PDF, 143KB)
    http://www.rcn.org.uk/__data/assets/pdf_file/0007/359359/003871.pdf

    An introduction to supporting people with autistic spectrum conditions

    Available from the library

    QCF intro to autism 431x589

    Sue Hatton and Tom Boughton
    This book provides an introduction to supporting a person with autism. It explains how to work in a person centred way that takes into account the person’s experience of the autistic spectrum. The book explains the difficulties that people with autism might experience with communication, social interaction and imagination as well as their possible sensory needs.
    This book puts the person with a learning disability at the centre of the support you give. It uses real life stories, activities and thinking points to cover all of the learning outcomes and is full of practical examples of how to apply the ideas to the support that you provide.
    The book is designed to support the Level 2 and 3 Diplomas in Health and Social Care (learning disability pathway) and the Common Induction Standards and in particular:

    Level 2 - An introductory awareness to supporting people with autistic spectrum conditions
    If you work with people with autistic spectrum conditions and are studying for a health and social care qualification, or you want the right information to help your personal development, then An introduction to supporting people with autistic spectrum conditions is for you.


    1 Jun 2012

    Survey uncovers terminology preferences

    A survey by the Netbuddy website has found that the term that parents, carers and
    professionals prefer to describe the people they live and work with is a person with a „learning
    disability‟. This term took 36% of the votes, with „special needs‟ coming second with 23%.
    Some felt that „special needs‟ referred more to school-age children, with „learning disability‟
    more appropriate for adults. However, the survey found considerable debate about which
    term to use, with 11% admitting they used various terms interchangeably. The term „learning
    difficulties‟ polled 10% with some feeling that „learning difficulties‟ referred to conditions that
    affected learning, such as dyslexia, and often referred to a child‟s academic attainment.
    Netbuddy

    Agreeing Together [UK] – a contract for the future


    The Learning Disability Coalition launched its final report, „Agreeing Together – a contract for
    the future‟ in the Houses of Parliament on 22 May. The report is based the things that people
    with learning disabilities have said need to change over the next ten years. This lead to the
    creation of the 15 agreements which form the contract for the future. Download the report and
    poster from their website and sign up to the Contract online.
    Learning Disability Coalition
    http://bit.ly/JQdSYH
    Sign up: http://chn.ge/JIMa9Y
    Contact a Family [UK] helpline celebrates 10 years

    Contact a Family's helpline is celebrating a decade of providing free advice, support and
    information to thousands of families on any aspect of raising a disabled child.

    In addition to the Helpline Contact a Family provide a brilliant website that lists conditions and syndromes.
    The site gives patient friendly information for children and adults with disabilities, serious health conditions and rare disorders.

    CAF Directory A-Z Listings 

    At present, you can view five conditions for free in a six-month period. COPE Library also has a subscription.

    0808 8083555
    helpline@cafamily.org.uk

    UK Annual Learning Disabilities Report

    Posted: 29 May 2012 12:28 AM PDT
    Improving Health and Lives, the learning disabilities public health observatory was set up in April 2010 following the publication of the Michael report. It exists to help understand the experience of people with learning disabilities and to produce evidence aimed at bringing about improvements. The annual report looks at information collected by government departments. IHAL [...]

    28 May 2012

    Mental Capacity - Submissions for Proposed Legislation

    The Oireachtas Committee of Justice, Defence and Equality has published its report on the Mental Capacity Bill (itself yet to be published); the report includes the many submissions  The Committee received and a record of its oral hearings...

    The Full report can be seen here. [It's a very large pdf file so may take time to download]

    The Irish Times - Tuesday, May 8, 2012 Ending a legal limbo
    IT IS a sobering thought that thousands of Irish citizens have been consigned to a legal limbo by a 19th century British law which classifies them as “lunatics”. This is the fate endured by those who have an acquired brain injury, an intellectual disability or who suffer from a serious mental illness that could impact on their ability to make decisions. Under the 1871 Lunacy Act they have few rights, and can be subject to the whims of institutions or official bodies in decisions relating to their lives and welfare.


    25 May 2012

    Change and Voluntary Disability Organisations

    Change and Voluntary Disability Organisations
    “Things do not change; we change.” - Henry David Thoreau
    Below are the presentations from the Change and Voluntary Organisations, the profiles of the speakers and the timetable for the event.
    Post AGM Event was held on 23rd May 2012 in F2 Centre, 3 Reuben Plaza, Rialto, Dublin 8.
    Disability organisations are surrounded by change; the question for all of us to consider is how are we responding to this change? The Value for Money and Policy Review of Disability, the UN Convention on the Rights of People with Disabilities, the Universal Health Insurance and the HSE reports on Adult Day Services and on Congregated Settings are all signalling a fundamental change in how services will be funded and provided to people with disabilities.  The purpose of the discussion is to gain an understanding of the changes afoot and how best we can prepare ourselves for them.
    Below are the presentations from the Change and Voluntary Organisations, the profiles of the speakers and the timetable for the event.

    Introduction by Lillian Buchanan »»
    Introduction by Lillian Buchanan DFI Seminar on Change and Voluntary Disability Organisations Change Change we can’t do anything about Change we can’t do much about Change we can ‘manage’: Change...

    A Positive Symmetry – Gerard Quinn »»
    A Positive Symmetry – Gerard Quinn Change and Voluntary Disability Organisations DFI Conference, 23rd May, 2012. International | Regional | National A Positive Symmetry – Gerard Quinn The International Impulse….. United...

    6 Apr 2012

    HSE Publishes Three Disability Care Group Reports

    14th March 2012

    The Health Service Executive has today published three Disability Care Group Reports that will assist with the strategic planning and implementation of the major change programme for disability services that is underway.
    The reports that have been published:

    Research Resources - Overview


    April 2012 – Where to begin –places to find research and policy on intellectual disability in Ireland. 

    National/Governement level policy & research :

    Disability Federation of Ireland. Available at: http://www.disability-federation.ie/index.php?uniqueID=2  [Accessed April 6, 2012a] .

    Inclusion Ireland - National Association for People with an Intellectual Disability. Available at: http://www.inclusionireland.ie/  [Accessed April 6, 2012b].

    National Council for Special Education. Available at: http://www.ncse.ie/index.asp  [Accessed April 6, 2012c].

    NDA Home Page. Available at: http://www.nda.ie/  [Accessed April 6, 2012].

    Research - University/Health Institutions Ireland

    Health Research Board. Available at: http://www.hrb.ie/about/  [Accessed April 6, 2012a].

    LENUS - Irish Health Repository. Available at: http://www.lenus.ie/hse/  [Accessed April 6, 2012b].

    Academic Research:

    Databases
    International databases that we use for journal articles are CINAHL, PubMed, PsychInfo, and Psych Behavioural Sciences. Contact Sheila for login details. 

    Journals:
    Key journals we use are:
    Learning Disability Practice (ID, UK)
    Frontline (ID, Ireland)
    REACH - journal of special education needs (ID, Ireland)
    Nursing Standard(General, Ireland)


    International databases we use for evidence based practice are:

    Trip Database - Clinical Search Engine  The Trip Database is a clinical research tool designed to allow health professional to rapidly find the highest quality clinical evidence.

    Cochrane Reviews - Cochrane reviews represent the highest level of evidence on which to base clinical treatment decisions.

     Specialist databases we use are:
    BILD, the British Institute of Learning Disabilities. Available at: http://www.bild.org.uk/about-bild/aboutbild /  [Accessed April 6, 2012].[Contact sheila for membership login]

    Contact a Family - Provides an A-Z listing with basic information on many
    ID conditions/syndromes and contact details of specialist support groups.

    OT seeker - Occupational Therapy. Available at: http://www.otseeker.com/?org_id=221   [Accessed April 6, 2012].

    PEDro. Physiotherapy . Available at: http://www.pedro.org.au/?org_id=221

    16 Mar 2012

    Intellectual disability nursing and transcultural care.

    Doody, Owen; Doody, Catriona M.; British Journal of Nursing (BJN), 2012 Feb 9; 21 (3): 174-80 (journal article - tables/charts) ISSN: 0966-0461
    In today's healthcare environment, nurses are urged to use up-to-date research evidence to ensure better patient outcomes and inform nursing decisions, actions and interactions with patients. Wit...
    Subjects: Transcultural Care; Ethnic Groups; Transcultural Nursing; Mental Retardation.

    Available from our New Health Databases via this link
    British Journal of Nursing 

    Interventions for Drooling in Children with CP

    final_cochrane_logo
    Oral motor difficulties in children and young people with learning disabilities can lead to saliva overflow, commonly called drooling. With young people with profound intellectual and multiple disabilities, this can increase the risk of inhaling saliva, food, or fluids into the lungs.
    Our friends at the Dental Elf came across this systematic review of interventions for drooling in children with cerebral palsy, which we thought our readers may find useful.
    Drooling can cause chapped or sore skin around the mouth and chin, and can lead to skin and mouth infections, dehydration, difficulties chewing and a range of other issues.  The Cochrane review set out to evaluate the effectiveness and safety of interventions aimed at reducing or eliminating drooling in children with cerebral palsy.
    The reviewers included only randomised controlled trials (RCTs) and controlled clinical trials (CCTs).
    Six studies were included in the review.  Four were trials using botulinum toxin-A (BoNT-A) and two were trials on the pharmacological interventions, benztropine and glycopyrrolate.
    No RCTs or CCTs were retrieved on surgery, physical, oro-motor and oro-sensory therapies, behavioural interventions, intra-oral appliances or acupuncture.
    A meta-analysis of the studies eligible for review was not possible, so a descriptive summary was provided.
    All studies showed some statistically significant change for treatment groups up to 1 month post intervention. However, there were methodological flaws associated with all six studies.
    The authors concluded
    It was not possible to reach a conclusion on the effectiveness and safety of either BoNT-A or the pharmaceutical interventions, benztropine and glycopyrrolate. There is insufficient evidence to inform clinical practice on interventions for drooling in children with CP. Directions for future research are provided.
    Walshe M, Smith M, Pennington L. Interventions for drooling in children with cerebral palsy, Walshe M et al., Cochrane Database of Systematic Reviews 2012, Issue 2, http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD008624.pub2/abstract

    9 Mar 2012

    Quick Link to All ID articles on CINAHL

    Searching for articles on Intellectual Disability can be tricky because of all the other labels author's might use like Mental Retardation and Learning Disability.  To quickly get all the ID articles (before drilling down to specific issues within ID) I've created a link to a search that gathers all ID articles using all the terms. You just start your search with this link
    Intellectual Disabilit(ies/y) OR Learning Disabilit(ies/y) OR Mental Retardation

    It will open up the  CINAHL Database, run the search using all relevant terms.  Just add whatever other topic you need e.g. AND LEISURE, AND SPORT, AND EMPLOYMENT.

    Happy Searching!!

    24 Feb 2012

    MENCAP - What is a Learning Disability?

    What is a learning disability?
    Mencap has updated its definition of learning disability.  “The old definition often made it hard to do our work effectively,” explained Sarah Bernard, Mencap’s head of communications and marketing.  “Whether campaigning, fundraising or promoting our services, we faced the challenge that most people do not know what a learning disability is.  “The old definition didn’t answer the question ‘What is a learning disability?’.  Instead, it focused on causes and what a learning disability isn’t.  We wanted a new definition that would be easy to understand for people with no knowledge of learning disability.”

    10 Feb 2012

    Full Text of Journals Available Now to COPE Staff

    Since January we've had access to 4 health databases that contain the full text of many health, psychology, nursing, and therapy journals. If you would like to access the new services please contact me.

    Learning Disability Nursing task group call on NICE to establish evidence based guidelines for commissioning

    Feb 032012
    Report
    In recent years, the number of people training as learning disability nurses has been falling. This report presents some of the issues believed to be at the heart of this and presents some potential solutions.
    The report includes an analysis of:
    • the difficulties in reliably identifying national supply and demand problems with numbers of student places being commissioned
    • the number and geographical spread of education and training courses
    • key issues with clinical placements
    The authors also present as problematic, the non-strategic way in which this specialist part of the National Health Service workforce is being commissioned, planned and managed.
    They consider that there is a lack of strategic leadership in commissioning and delivering training for learning disability nurses and action is needed urgently to avoid what they describe as a compromised workforce.
    In addition, it is argued that as there is clear evidence to show that not only do people with learning disabilities have more health problems when compared with the general population but also receive an inequitable from mainstream health services that is it critical that the National Health Service make the best possible use of its specialist learning disability workforce to help address the health burden and improve the quality of mainstream health service responses.
    The authors conclude that:
    Learning disability nursing has moved from a narrowly defined role, within long term care, to a much broader role within the National Health Service and beyond.
    They suggest that a:
    Unique interplay between four major factors; Higher Education issues, workforce issues, along with poor data and ‘intelligence’ issues, and field of practice issues collectively threaten and compromise this specialist workforce in the short to medium term.
    They make a number of recommendations, including:

    Attitudes to disabilities revealed

    [Posted: Mon 23/01/2012 by Deborah Condon www.irishhealth.com]
    Most people believe that children with certain disabilities should not attend the same schools as children without disabilities, a new survey has revealed.
    The survey by the National Disability Authority (NDA), which focused on national attitudes to disability, involved over 1,000 randomly selected adults and more than 250 people with various disabilities.
    In the area of education, it found that while many people appeared to have no problem with children with physical disabilities attending schools with other children, a majority did have a problem with children with mental, intellectual, hearing and speech difficulties attending the same schools.
    Furthermore, one in four said that they would actually object if a child with a mental health disability was put into the same class as their child, while one in five would object if a child with intellectual disabilities or autism was placed in their child's class.....
    See Also

    National Survey of Public Attitudes to Disability in Ireland

    "The National Disability Authority undertook a national survey of public attitudes to disability in Ireland in July and August 2011. This survey builds upon previous surveys conducted by the Authority in 2001 and 2006."

    Mental capacity Bill to be issued Shortly

    MICHAEL O'REGAN
    LEGISLATION UPDATING the law on mental capacity will be published shortly, Minister of State for Health Kathleen Lynch has said.
    “The Bill will reform the law in respect of adults who are vulnerable, in the sense that they may lack some or all capacity to make important decisions for themselves,’’ she said.....

    3 Feb 2012

    UPDATE - The Epilepsies - Diagnosis and Management of ....NICE