Sexual Health Library - a HSE Resource

A sexual health resource library has been set up in each Health Promotion office in Munster. 

Material is available to borrow.

Resources for working with clients with intellectual disabilities include:

·         Manuals & DVDs on general sexual health (Resources for Trainers and Staff)

·         Manual & Resources on Puberty 

 ·         Books supporting sexual health

Eric Emerson - Health inequalities and people with learning disabilities

People with learning disabilities are much more likely to have poor health than other people. We also know quite a lot about why this happens.

We have produced a report which summarises what we know. This report will be useful to people who commission or provide services for people with learning disabilities. We have also produced a one-page summary of this report for professionals and family carers.

We will update this report each year.
SEE ALSO
The Effectiveness of Health Checks

We have reviewed all relevant scientific studies on the effectiveness of health checks for people with learning disabilities.

The HANS Autism Physician Handbook

HANS has published a 34 page visual guide to autism behavorial “symptoms” which can be viewed online or downloaded and printed out. Hard copies are also available by mail order. 

Download as a PDF or Click here to read online  

“The HANS Autism Physician Handbook is an excellent and creatively designed reference that incorporates simply and succintly important information on early recognition of Autism. Its visual appeal with easy reading is not only an important resource to be used by any physician, but other medial professional, educators, and parents will find it very useful.”      

Sarojini Budden MD, FRCPC, FAAP
President, Oregon Pediatric Society

“The HANS Autism Physician Handbook is a remarkably clever, illustrated manual for doctors (and parents) that conveys instantly a simple process for early detection of autism. It’s a ‘must see’ for all primary care physicians!”

David W. Willis, M.D.
Vice-President, Oregon Pediatric Society
Director, Northwest Early Childhood Institute

“This handbook will enable primary care clinicians caring for children to screen for those at risk of autism.”

Click here to read online  

Siobhan Kirby - The Breast Cancer News Service

Congratulations to Siobhan Kirby.

The BCN News ran a summary of Siobhan Kirby’s recent work Breast awareness within an intellectual disability setting in their latest issue, which they distribute to over 20,000 readers

The BCN News provides its readers with breaking news on breast cancer research and treatment every weekday.

For a full copy of Siobhan's article contact The Library 

Group Homes for People with Intellectual Disabilitie

Encouraging Inclusion and Participation

Tim Clement and Christine Bigby
Foreword by Professor Jim Mansell

Paperback: £25.00 / $39.95

2009, 234mm x 156mm / 9.25in x 6in, 288pp
ISBN: 978-1-84310-645-6, BIC 2: JFFG MQCX JKSN

contents

Group homes are the dominant form of residential accommodation for people with severe learning or intellectual disabilities, and yet there are significant problems within these living environments. This book seeks to highlight the key issues for both residents and staff, and offers practical suggestions for improving community living.

Based on original empirical research and drawing on extensive field notes, the book paints a picture of life in group homes today. The authors propose a framework for increasing community presence and participation, and consider the barriers to be overcome if progress is to be made in achieving these key goals. The notion of 'homeliness', the challenge of maintaining a balance between individual and group needs and the concept of practice leadership are all explored.

Group Homes for People with Intellectual Disabilities is essential reading for anyone working with people with learning or intellectual disabilities in residential services, as well as academics and students of disability studies, social work and health and social care 

CONTACT THE LIBRARY TO BORROW THIS BOOK 

Down Syndrome - Books you can borrow from the Library

Down Syndrome and Health Care

Vee Prasher and Beryl Smith

2002            ISBN 1 902519 20 5    

This book provides practical information for staff, families and other carers on the important health issues for adults with Down syndrome. Specific medical issues are covered including:

vision

hearing

heart and circulation

respiratory conditions

skin conditions

skeleton, joints and dental care

The book also covers personal and social issues and includes a resources section with sources of further support and information.

Down Syndrome Issues and Information Complete Education and Development Pack (0-16 Years)

Designed to support education and development from birth to 16 years, this package of books includes a wealth of information covering many areas of development and education for children with Down syndrome. Topics covered include speech and language, reading and writing, memory, motor and number skills development. The package includes checklists for recording individual progress.

Down’s Syndrome and Dementia: for carers and support staff 

Karen Dodd, Vicky Turk and Michelle Christmas

2009            ISBN 978 1 905218 08 0             Price £20.00

A resource book for family carers, staff and other professionals to help them care more effectively for people with Down’s syndrome and dementia.

The book focuses on practical day to day issues, including:

supporting the person with Down’s syndrome and dementia to maintain skills and independence in every way and for as long as possible

treating treatable conditions

understanding and responding appropriately to changes in behaviour during the early, middle and late stages of dementia

providing emotional reassurance for carers

improving the confidence of carers to look after individuals

identifying local supports and resources

being open to the problems that may arise and help with coping

tips and solutions

The book has been revised to take into account further developments both in working with people with learning disabilities in general and specific developments for people who develop dementia.

Down Syndrome: Neurobehavioural Specificity [Paperback]

Jean-Adolphe Rondal PhD (Author), Juan Perera (Author)

People with Down Syndrome show a specific developmental profile with strengths in social understanding and visual learning and memory, and more difficulties with motor processes, speech and language, and auditory-vocal short-term memory. It is important that parents, practitioners and teachers know this and adapt interventions and educational approaches to take account of this particular profile.

This is the only book to date that explains the developmental profile of people with Down Syndrome from its many different angles. It covers a range of perspectives, including the biology, psychology, speech and language, health care, and social competence of both children and adults with Down Syndrome. All the information is gathered and placed in the context of the neuro-genetic science that is developing around this area.

Internet Resource – Brighter Tomorrows

This program is designed to help answer your questions, educate you about Down syndrome and share the stories of other parents in similar situations.  Please choose your starting point:

If you have just received a pre-natal diagnosis of Down syndrome

If you have just been told that your child has Down syndrome

Skip the introduction letter and enter program

Fine Motor Skills in Children With Down Syndrome: A Guide for Parents and

Professionals (Topics in Down Syndrome) 

[Paperback] Maryanne Bruni (Author) 1998 ISBN-13: 978-1890627034

"An invaluable resource for families and professionals, and a great companion to the previously published book, Gross Motor Skills in Children with Down Syndrome. The author's suggestions for encouragement of fine motor skill development make use of common household materials that are accessible to all families. I particularly like the 'Grandma's and Grandpa's Lists' at the end of most chapters, which give gift ideas that are fun as well as educational." -- Bonnie Patterson, M.D., Director, Down Syndrome Clinic, Cincinnati Center for Developmental Disorders

TUESDAY'S CHILD

by Kathy Evans SBN:9781863255141 Published:01/03/07

‘In every life there is a defining moment; Caoimhe’s diagnosis was mine . . .’

 ‘Caoimhe today is as beautiful, as unblemished, as she was at the hour of her birth, before she was stamped and branded. She is bigger than any label. When I look at her I am as in love with her as always... there are times when I see her and I still catch my breath; the feeling is so intense it is painful. That pain, I know now, belongs to love, to grief, to loss, to the disappointment of mortality, and it will never go away. But I don’t want it to. Sadness is not the worst thing I can feel.’
When journalist Kathy Evans wrote what was to become an award-winning series of articles about the birth of her third child, Caoimhe (pronounced Keeva), she was inundated with responses - not just from other parents of disabled children but also from parents-to-be, relatives, teachers, doctors and many others who urged her to keep writing because they wanted to know more.

Down's Syndrome: The Essential Guide (Need2know) [Paperback]

Antonia Chitty (Author), Victoria Dawson (Author)

Publisher: Need2Know (1 Jun 2010)

Language English

ISBN-10: 1861440839

Contact the library to order articles, borrow books, help with research.

Vitamin D supplementation for infants information for health professional

Health Service Executive (HSE)

1-Sep-2010

Available to download or contact the library for print copy.

Irish Nursing Research - a new resource

The NCNM  research database has gone live and can be found at http://d685659.u42.hosting.digiweb.ie/
 or through the home page of www.ncnm.ie
.

The database will help to share completed Irish nursing and midwifery research. Contributing to the  the database will build a valuable resource for researchers, and for all nurses and midwives working in clinical practice, education and management.

The database can be used by anyone to search for Irish nursing or midwifery research. Research abstracts accepted for submission should be at master's award and beyond or have successfully gone through a peer review process of funding or commissioning.


Have your papers been included in the database?  


Contact the library for help with getting your research included.

BOOK REVIEW - Bereavement loss and learning disabilities a guide for professionals and carers

Bereavement loss and learning disabilities a guide for professionals and carers RobinGrey . Jessica Kingsley , London , 2010, pp . 176 ,ISBN 978-1-84905-020-3 . £18.99 doi: 10.1111/j.1468-3156.2010.00648.x

Robin Grey is a welcome new voice to the small but developing literature on loss and bereavement and people with learning disabilities. In the last 10–15 years, a group of professionals and academics who are concerned about this often painful, complex and difficult subject have set about researching and writing about it. They have also developed various professional networks across the United Kingdom, which have fed into this work at conferences and in various publications. The main group is the Palliative Care for People with Learning Disabilities Network (PCPLD). Interestingly, Grey’s work on the subject has not emerged from any of these networks. Grey’s book is rooted in his practical experience working in day and residential services for people with learning disabilities, then working as a counsellor in the National Health Service, which is what he does today.......
I would describe this as an entry level book. I mentioned it is rooted in Grey’s practical experience; there is, for example, no new research. I found it basic, practical and comprehensive. I think this book gives a succinct introduction to this subject. I would say it ticks all the right boxes without adding anything new to the existing literature. It reads at times like a manual, which is no bad thing and I believe that established practitioners may gain new insights from this book.


To read the full review - British Journal of Learning Disabilities. Volume 38, Issue 3, page 238,September 2010


Recommend this book for the library. 

Electronic Access to Nursing Times

COPE LIBRARY has arranged online access to Nursing Times -

To  access Nursing Times contact Sheila O'Flynn.

Nursing Times 7 September 2010

View all stories from this issue.

·                                 Assessing the most clinically and cost effective method of closing skin after surgical procedures

Non-absorbable and slowly absorbed sutures are often used to close wounds. The results of aliterature review and economic assessment challenged these methods 

·                                 Costs can be cut by providing high quality training in leg ulcer care

Leg ulcer care is complex, and a lack of understanding by managers and funders about its management can cause unnecessary costs and harm care, says Irene Anderson

·                                 Equity and excellence: measuring the quality of wound care and tissue viability services

Effectiveness of care provision must be demonstrated in the new NHS. Practice must be aligned to priorities for quality and true measurements of care recorded

·                                 How to manage bacterial meningitis and meningococcal septicaemia in under-16s

A member of the NICE guideline development group highlights the important issues from the latest evidence based guideline for Nursing Times readers

·                    

Down's Syndrome: The Essential Guide

Down's Syndrome: The Essential Guide (Need2know) [Paperback]

Antonia Chitty (Author), Victoria Dawson (Author) 

• 
  

• Publisher: Need2Know (1 Jun 2010)

• Language English
• ISBN-10: 1861440839

Contact the library to order articles, borrow books, help with research.

Making Sense of Child and Family Assessment

How to Interpret Children's Needs

Duncan Helm
Foreword by Brigid Daniel

Part of the Best Practice in Working with Children Series series

ISBN: 978-1-84310-923-5, BIC 2: JKSN JFFE1 JKSB1

More information

 contents

 |

The application of assessment frameworks hinges on human qualities and skills which are naturally prone to bias and inconsistency. Making Sense of Child and Family Assessment aims to support workers in analysing and making sense of the information gathered, and increasing accuracy and empathy in assessing the needs and risks for vulnerable children and young people.

This book offers best practice guidance on how to analyse information gathered during the assessment of children and young people and their families. Good assessments take time and need to be appropriately resourced. A range of analytical tools are also needed if practitioners are to present assessments of children's needs which lead to meaningful care plans and improved outcomes. Helm introduces the key messages emerging from policy and research, and provides insights into today's multi-disciplinary practice.

Professionals working in child welfare and protection roles, such as social workers, health visitors, midwives and teachers will find this practical guide to analysis invaluable in interpreting needs and outcomes.

 Contact the library to order articles, borrow books, help with research.

Who Decides & How? People with Intellectual Disabilities - Legal Capacity & Decision Making (2003)

A discussion document on people with an intellectual disability and legal capacity and decision making issues.

Available to borrow.

Grants for transition from institutional to personalised models of care

Minister Moloney announces €2.6m in innovation grants for disability and mental health

29 July 2010

John Moloney T.D., Minister of State with responsibility for Disability and Mental Health today (Thursday, 29 July 2010) announced the first round of grants, totalling over €2.6m, awarded by the Genio Trust to support transition from institutional to personalised models of care in disability and mental health services. These grants follow the decision by the Minister in December 2009 regarding to allocate €3m of innovation health funding to the Trust for a special fund designed to encourage innovative, personalised supports which offer better opportunities to people with disabilities and mental ill health to reach their full potential.

“The Genio Trust is a leading example of partnership between Government and philanthropy, developed with the support of The Atlantic Philanthropies, my Office for Disability and Mental Health in the Department of Health & Children and the HSE.”, the Minister said. In his announcement Minister Moloney emphasised that “The service reforms which will be facilitated by the Genio Trust are fully in line with the objectives of Government policy as set out in A Vision for Change and with the objectives of the National Disability Strategy.”

Contact the library to order articles, borrow books, help with research.

Irish Child Health - Research Papers 2000-2008

You may be interested in the recently developed Irish Child Health Database  

This study systematically reviewed the peer review published literature on Irish Child Health from 2000 to 2008. Findings were mapped according to a range of characteristics which demonstrated important features observed from the studied papers:

1.the nature of the research - study type;

2.the topic area of interest;

3.the demographic characteristics of the studied population and their geographical spread.

The major findings of the study are presented with regard to the aetiological (causal) or descriptive nature of the work, the classifiable or themed health-related outcomes and the types of studied populations - hospital-based, school-based or community-based. Background, methods and findings are detailed in the study report  http://www.childrensdatabase.ie/Irish-child-health-database/study-report.pdf

Contact the library to order articles, borrow books, help with research.

Palliative Care for Children with Life-Limiting Conditions in Ireland

Palliative Care For Children With Life-Limiting Conditions In Ireland- A National Policy

Year published: 2010

Download this document as a PDF (English Version)

Contact the library to order articles, borrow books, help with research.

New Challenging Behaviour charter launched

The Challenging Behaviour - National Strategy Group has launched a charter to promote the human rights of individuals with learning disabilities who are perceived as challenging. 

Up to 27,000 people with learning disabilities in the UK may have been given a label of challenging behaviour, resulting in this group of people being: 

- stigmatised and socially excluded - denied the right to ordinary lives in the community, to education, recreation and employment - placed in institutional settings a long way from home and families. 

The label challenging behaviour, has become misused over time. Rather than being used as a term to encourage carers and professionals to understand the underlying reasons for a person's behaviour, 'challenging behaviour' has been used as a diagnostic label, viewed as being intrinsic to the person. 

The Challenging Behaviour -National Strategy Group want people (and

organisations) to sign up to the charter to register their support for the principles it contains and to commit to action to improve the lives of children and adults who are labelled as challenging. We need as many people as possible to support us, so please ask your friends and family to sign up too.